Pardon me for the interruption of the “Girl Gang” posts – the rest are coming – BUT it has been awhile since I have done a Positive Purposeful Post. I need one! I am so busy being chased WHILE ON MY HAMSTER WHEEL that quite honestly, I haven’t had the time but more importantly the brain cells left to hardly write at all! I love writing and miss it. It’s just this roller coaster I have been on doesn’t seem to have a STOP button. (Insert mind pic of me getting thrown from the ride into a lava filled, alligator infested swamp)
For those of you who may be new to my blog or may just have missed the meaning behind my “Positive Purposeful Post”(s) here is the explanation – The founding belief of this company is to bring you inspiring positivity one breath at a time. All our products reflect this very idea. For example, our LFTG (Look For The Good) jars are filled with inspirational sayings/quotes. Each saying/quote has a crack ‘n peel backing so if you want to you can stick it on something for a positive reminder or simply throw it back in for a random draw another day. Head on over to our SHOP and purchase your very own today or bless someone else with one! WE ONLY HAVE A FEW LEFT! So, having said that, periodically I will be doing my own random draw out of my personal LFTG jar and will be posting it on here with a story that emulates that message. These will be named “Positive Purposeful Post”. Time for another one below –
“Forget all the reasons why it won’t work and believe in the one reason why it will.”
Again – perfect timing! So, as you readers know our life, our “situation” (which it is so annoyingly referred to on a regular basis – even by me) is difficult. Challenging. Demanding. Heavy. Painful. Emotional. Toilsome. And the list goes on . . . You wouldn’t believe all the negative words I could use to describe my journey on having a child with special needs. But who needs all the negative? Where is the positive? That is the whole reason why I began this blog. I not only wanted to help others “Look for the good . . . .” but I needed it too! I still do, probably now more than ever. But just like the quote says “ . . . believe in the one reason why it will” is how I survive. I have to constantly look for the one good thing. Just one. No matter how small. This particular saying is screaming at me so loudly today because of another big question we are being faced with currently. WHERE ARE WE GOING TO LIVE? I will stop there for today only since no one wants to read a blogpost soooooo long. If you personally know me and are freaking out about this question – yes, you will have to wait for the next post too. So, for today here is the good . . . . I had time and the heart to write today. Writing is one of the few things that really makes me happy. I am thankful. Remember . . . Forget all the reasons why it won’t work and believe in the one reason why it will. Much Peace and Love Y’all!
Sweet yet sassy and all things Southern! She and I first met years ago at church. We were attending a small group for parents of children with special needs. She will tell you she knew she was gonna love me from her first impression of me based on the introduction of myself. I announced to the church group – of all people – “Hey, y’all, my name is Jane Hart and I do love Jesus, but I also like to cuss”. So, there you have it. Two peas in a pod. It never matters how long (or short) it’s been since we have seen each other because we always instantly carry on. We laugh and cry. She understands from deep in her soul and by living it herself why my heart is broken a little every day. We are not just mamas. We are mamas of children (my now adult one) with special needs. Our girls have nowhere near the same disability but the pain we experience is the same. We also know what it’s like to fight for our children every day. EVERY DAY! So, for today here is the good . . . I am BLESSED to call her my friend, my sister and to have her be part of my inner circle – my Girl Gang. Did I mention how beautiful and always put together she is? She is bold and courageous giving all she has to her family and friends. I am thankful. I love you, Dava! Much Peace and Love Y’all! Have a great weekend.
For those of you who may be new to our blog or may just have missed the meaning behind our “Positive Purposeful Post”(s) here is the explanation – The founding belief of this company is to bring you inspiring positivity one breath at a time. All of our products are a reflection of this very idea. For example, our LFTG (Look For The Good) jars are filled with inspirational sayings/quotes. Each saying/quote has a crack ‘n peel backing so if you want to you can stick it on something for a positive reminder or simply throw it back in for a random draw another day. Head on over to our SHOP and purchase your very own today or bless someone else with one! WE ONLY HAVE A FEW LEFT! So, having said that, periodically I will be doing my own random draw out of my personal LFTG jar and will be posting it on here with a story that emulates that message. These will be named “Positive Purposeful Post”. Time for another one below –
“If you are always trying to be ‘normal’ you will never know how amazing you can be.” Maya Angelou
Right? This is so true. However, it can be scary. So, most people think I love being in the limelight or love being the center of attention just because I don’t meet a stranger. Yes, it has been said numerous times “Jane will talk to a brick wall”. This is also true but what isn’t true is that I want all eyes on me. As extroverted as I am, I really don’t like everyone looking at me. I love speaking to anyone because it gives me a chance to learn about new things and new people.
This brings me to what happened yesterday. I was given the opportunity to be on one of our local television shows to announce the publication of my first book, My Summer with Jimmy and Nan Dee. While I was so excited to share this dream with others, at the same time, I was a nervous wreck. I was shaking and trying to remember what I was going to say. Then, it was time – 5, 4, 3, 2, 1 . . . and we’re on! Just in those few seconds I decided I should just be me. Being me isn’t everyone’s idea of being ‘normal’ – whatever that really means anyway. I am silly and animated. Very animated! I am also vulnerable and wear my heart on my sleeves. This leaves my feelings out there to be trampled on. But for today, here is the good . . . because I was determined yesterday to not be ‘normal’ I ended up being amazing! No, not in a bragging “I’m awesome” kinda way but I was amazing because I was passing on positivity AND if nothing else I got my message across – when you see or are around someone with special needs of any kind treat them like a human being. They are after all breathing – just like you. So, don’t be afraid to give a little bit of your sunshine away. If someone thinks you’re ‘abnormal’ because of it then be thankful you are strong enough to be you! You’re amazing! Much Peace and Love Y’all! Click on link for my live interview http://wspa.com/2017/12/05/my-summer-with-jimmy-nan-dee/
For those of you who may be new to our blog or may just have missed the meaning behind our “Positive Purposeful Post”(s) here is the explanation – The founding belief of this company is to bring you inspiring positivity one breath at a time. All of our products are a reflection of this very idea. For example, our LFTG (Look For The Good) jars are filled with inspirational sayings/quotes. Each saying/quote has a crack ‘n peel backing so if you want to you can stick it on something for a positive reminder or simply throw it back in for a random draw another day. Head on over to our SHOP and purchase your very own today or bless someone else with one! (They come in two different sizes) So, having said that, periodically I will be doing my own random draw out of my personal LFTG jar and will be posting it on here with a story that emulates that message. These will be named “Positive Purposeful Post”. Time for another one below –
“In the words of one great prayer: ‘Bless me into usefulness.’” Sogyal Rinpoche
This is one of my FAVORITES! First, don’t we all want to be blessed? Second, don’t we all want to be useful? Well, I know I want both of these things. If you have been one of my blog readers for any amount of time, especially reading the “Positive Purposeful Post”(s) then you know somehow each and every saying/quote impacts me in some amazing way. That is why I love pulling from my very own LFTG (Look for the good . . . ) jar for daily inspiration! Of course, this quote makes me think of what I am currently doing for work in my own life.
I am a substitute for a special education school. One of my daughters also attends there. I am a substitute these days because full-time wasn’t the best match for our life right now. However, I LOVE substituting! You get the chance to be in multiple classrooms and teach many different students. Since we are the adults and the teachers you would think the kids are benefiting from us, right? I do hope that is the case. On the other hand, I am not exaggerating at all when I tell you I am the one who is benefiting from these students EVERY TIME I WORK WITH THEM! I was recently asked to do a long-term sub position for a new student coming in to our school. I figured I could at least be useful in some way even though there were a lot of unknowns. Turns out I am being blessed by learning numerous things myself.
So, for today, here are many of the goods . . . I am having to learn sign language which has always intrigued me. I love to watch people sign. I am learning to let go of fear and show these students, who may have unpredictable behaviors, that I love them and am here for them. I do not want a child/adult (because some are adults already including my daughter) to ever think they aren’t loved by someone. We had one of our wheelchair bound, non-verbal, blind students communicate to us this past week that he did not want to be on a beanbag for leisure time. You may be wondering how does someone with these limitations communicate? If you could only witness it your mind would be blown. It is all about slowing down and watching, literally watching closely for some sign of communication. He somehow moved himself off the beanbag and we figured he wanted back in his wheelchair. He just received his new chair the day before and it is so comfy that he would rather be in it. He smiled when he was lifted back up. These are the extremely small yet oh so powerful ways of communication. I almost cried because these students are so dear to me. I always try to place myself in the shoes/socks/leg braces/wheelchairs (you get what I’m saying) of all people with special needs. It will change your perspective on life and you really will be blessed into usefulness. I encourage you to look for ways to help others and trust me, you in turn will be more than blessed. Much Peace and Love Y’all!
“Everyone you meet has something to teach you.”
Do they? Do you believe that? I honestly do believe that. However, it does not mean it is always what you want to learn and it may not be good but there is something to be acquired from every experience.
For example, with our kitchen renovation I have continuously learned that if you do not communicate well, it is not going to be a positive encounter with me. Oh, why must my big mouth with little fear of making justice happen always be tested?
Which of course brings me to people with special needs. If you know me, even in the slightest, either personally or by reading my blog, you know this is my passion and reason for being. Again, who knew a God-given talent would present itself through a dynamic personality and not being afraid to speak up?
So, for today here is the good . . . each non-verbal, differently abled, human being I am blessed enough to be in the presence of has gifted me with an opening of my heart and mind. Have you ever tried to talk to someone who is non-verbal? Maybe you are scared and that’s okay. You don’t know what to say because you don’t know how much they can actually understand. Or what if it feels awkward because they don’t verbally speak back to you. Who cares? I say this ALL THE TIME – If my entire life I treated my own daughter, Grayson, like a real human being (because she is one) and she understood very little to nothing then what have I really lost? NOTHING! But what if I never talked to her like a real person? What if I sat her in the corner or off to the side and ignored her – even ignored her a little because she can’t speak like me? What if all her life she has been stuck in that body that doesn’t work the way she wants and nobody thinks she is “in there”? How would that feel? What have I lost then? EVERYTHING! I have lost the privilege of taking care of a gift The Great Lord, Himself, has given to me! He chose ME! He chose my husband, KEVIN. He chose our other daughter, KLOIE, to be her sister. He chose the JOHNSON and the HART families to be Grayson’s family. What are we doing with the gift we were given from God? What are you doing with what you have been given? Do you treat people with special needs like they are less? Do you treat them as if they don’t exist at all or hardly at all? Do you treat them like they don’t matter as much because they can’t do what we do, talk like we talk, or look like we do? I compel you to see that “EVERYONE YOU MEET HAS SOMETHING TO TEACH YOU”. Much Peace and Love Y’all!
A typical night just like any other. I went in Grayson’s room to check on her and tell her goodnight. I leaned over, kissed her several times, and said the same thing I always say “Goodnight, Grayson, I love you. Night, Night Mama loves you.” Then it happened. As I was turning to leave, her eyes went blank and stared off to the side. She wasn’t moving. She looked frozen. The only time I have ever seen anyone dead before the funeral home “takes care of the body” was when my grandmama died. Since her only two children, my mama and my aunt, were already in Heaven it was up to the grandchildren to handle arrangements. We were called to the funeral home to view the body. I will never forget that! My grandmama’s body was lying on the cold, silver slab of a table with her eyes still open and looking off into nothing. As horrible as it sounds was as horrible as it looked. That was what Grayson looked like for a moment before the screams started. I felt like I was in another room looking through a window but couldn’t get to her. In reality that couldn’t be further from the truth. I was literally leaning against her bed. But now I was frozen. I couldn’t help her. I had to watch as her “little for an 18-year-old” body just trembled. Then that single tear ran from her right eye down her sweet, round cheek. Her arms started flailing and she began wailing. As soon as the cries stopped you would think it’s over but it only means she is beginning another seizure. After the third one I climbed into her bed and waited. Hoping her night meds would kick in soon and praying God would not take her. Sometimes when a seizure comes on it looks as if an invisible person is standing over her hurting her. It’s so painful. I leaned back against the foot of her bed and turned my head towards her door. There hangs the beautiful canvas my niece painted for her with a Bible verse I picked that reminds me how wonderfully made Grayson is. For today here is the good . . . She made it through and the seizures finally stopped. At least the ones we can see. And it is a great reminder of how God specially made Grayson and how much we should all love and respect her as a person, as well as anyone you are ever around that has special needs. Just because someone is non-verbal doesn’t mean they aren’t in there! Peace and Love Y’all!